A Brighton man shares his mother’s battle with motor neuron disease

A MAN has described his mother’s heartbreaking struggle with a degenerative disease that has left her so debilitated she is struggling to hold a glass of water.

Glen Marshall, 46, wants to raise awareness about motor neuron disease after his mother Shelia was diagnosed with the condition in 2019.

Three years after her diagnosis, Mr Marshall now says his mother is wheelchair bound and struggles with many basic chores.

Mr Marshall, from Brighton, said: “My mum was first on the dance floor and she was a brilliant mother, grandmother and wife.

“It’s terrible. What I’ve experienced in the last three years is appalling.

“Unless you know someone involved, I don’t think there is enough awareness. It’s heartbreaking to see, it’s just a downward spiral.”

The Argus: Glen with mother Sheila in 2012, seven years before she was diagnosed with MND.Glen with mother Sheila in 2012, seven years before she was diagnosed with MND.

Glen says his family first noticed that Sheila began struggling in 2017 when she began walking with a limp.

After speaking to doctors about the possibility of motor neuron disease, she was finally diagnosed two years later, around the same time Glen’s father died.

Around 5,000 people have MND in the UK, with most of the diagnosed symptoms occurring in their 60s.

The Argus: Sheila, 72, has had MND for the past three years.Sheila, 72, has had MND for three years.

Sheila, 72, struggles with the degenerative disease that causes a gradual loss of muscle function.

Glen is now trying to raise awareness of motor neuron disease by undertaking a sponsored walk from Worthing Pier to Palace Pier in Brighton.

So far he has also risen around £1,500 in its first fundraising week.

Mr Marshall said: “If there’s a cure next year it will be too late for mum, but if someone further down can benefit from it then it’s brilliant.”

A spokeswoman for the MND Association said: “Such support from Glen and others ensures that the MND Association is there for people affected by MND – helping to improve their care and support, advocating and funding important research to ensure we achieve our vision – a world free of MND.

“We are absolutely thrilled that Glen is taking a sponsored walk to benefit the MND Association.”

https://www.theargus.co.uk/news/20756202.brighton-man-shares-mums-battle-motor-neurone-disease/?ref=rss A Brighton man shares his mother’s battle with motor neuron disease

Fry Electronics Team

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