Celine Dion’s tragic story is even sadder

But if she is the epitome of romance; Behind the scenes, Dion is experiencing tragedy of the worst kind. And now it’s only gotten more tragic – she announced in a tearful Instagram video that she’s been diagnosed with an extremely rare and extremely debilitating neurological condition: stiffness syndrome. People.

The disorder, which affects only about one in a million people, is incurable. It causes contractions that can affect your ability to walk or sing, and Dion said in his video that it affects “every aspect of my daily life.”

“As you know, I have always been an open book and I was not ready to say anything before, but now I am,” she said. “I’ve been dealing with my health issues for a long time and it’s been difficult for me to face these challenges and talk about everything I’ve been through.”

As a result, Dion said she has been forced to reschedule certain dates on her upcoming European tour, as the condition affects her ability to perform as well as carry out normal activities. Teacher.

This kind of diagnosis would be terrible for anyone, but there’s an extra element of terrible luck for Dion: because her past story is so traumatic.

She talked about the history of her struggle with infertility – the singer, who has 13 siblings of her own, has been trying to have a baby for years. She suffered a miscarriage and is said to have undergone seven IVF cycles and two surgeries before becoming pregnant with a boy and fraternal twins.

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She said in an interview in 2013: “I think as long as my health allows it and unless the doctor says I’m physically unable to do it, I’ll continue IVF until someone tells me. I stop”.

In 2016, the singer’s husband and manager, René Angélil, 20 years older than her, died of throat cancer. And then, just two days later — on Angélil’s 74th birthday — her brother, Daniel, also died of cancer at the age of 59.

Last year, Dion spoke candidly – which has become her trademark – about whether she could imagine herself finding love again. “I don’t think about a relationship and falling in love again,” she said. “I don’t. Losing my husband, my children losing their father, that’s a huge thing.”

For a very determined person – whose career is very stable and full of growth – experiencing so many personal setbacks is a shock to all of us. Not just her fans, but for those who, like me, grew up with the dazzling Celine Dion in the setting of their childhood (or childhood home – I will forever associate her voice with her voice. she and my mother played her in 1997 let’s talk about Love albums in the kitchen on Sunday afternoons).

Since the most recent revelation of her ill health, there has been a wave of shock, love and support on social media. Main love? “No one has suffered as much as this” – and “No one deserves this pain, and especially not an icon that has brought such joy.”

The way she won, despite going through a lot of pain, is a testament to her strength and determination. If there’s anyone who will gracefully fight the coming months and years, it will be Dion. She sang it as she meant it: she would carry on.