Desperate mother claims she has to sleep in bed with her disabled son to protect him

Kayley Thompson, of Pelton, County Durham, is unhappy with the NHS and her council after social workers allegedly said a new bed would ‘lock her son in’.

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The County Durham mum opens up about having to sleep in a single bed with her disabled son

A distraught mother is forced to sleep in a single bed with her disabled son to keep him safe at night as the boy has been denied a specially adapted support bed in the NHS.

Kaylan Gibson, six, has cerebral palsy and other conditions and is prone to falling out of his regular bed at night.

An occupational therapist had said it was likely Kaylan would be given a new, specially designed Oasis crib with high, padded sides to prevent him from injuring himself.

But Kaylan’s family have now been told the structure will not be provided, Chronicle Live reports.

Kaylan’s mother Kayley Thompson, 25, said: “I feel betrayed. Disappointed and cheated. I literally cried during the whole meeting, but the answer I got was, ‘Don’t you think you’re just sleep deprived? Good night’s sleep.’

Kayden Gibson is pictured with mom Kayley Thompson and dad Jordan Gibson


Newcastle Chronicle)

“How can I do that? When you share a bed with a child who has so many needs, you’re afraid to go to sleep if you hurt him.”

Kayley, from Pelton, County Durham, is now sleeping in his single bed with her son to ensure he is safe.

She and Kaylan’s father Jordan Gibson, 26, are now fighting to buy the bed privately – but it will cost £8,500.

They have launched a crowdfunding website to solicit donations and have already raised nearly £2,000. To donate, click this link.

Kayley said, “I thought we’d just have to get up and fight for this bed.”

Her son was born prematurely at 28 weeks with two fourth-degree hemorrhages in the brain, resulting in cerebral palsy.

“Unable to walk or carry out everyday tasks, he also struggles with ADHD, has been diagnosed as autistic and suffers from sensory overload.

Kaylan also has hydrocephalus – fluid in the brain – which has resulted in him needing a shunt to drain the excess fluid.

And when Kaylan’s shunt became infected earlier this year, he required brain surgery to put in a new one, and Kayley has noticed that his mobility has decreased.

Kayden has a number of medical conditions, including cerebral palsy


Newcastle Chronicle)

Kaylan had slept in a zip-lock Safe Space bed since she was three years old, and Kayley said it helped keep Kaylan mentally and physically safe to sleep.

However, after Kaylan left the hospital in February after further surgeries to be fitted with a colostomy bag and PEG, he needed a very low bed as well as a bed that would protect him from falling or injury.

Kayley, who has no other children, said: “We were stuck and needed a bed ready so Kaylan came out of the hospital which resulted in a high profile adult bed that he’s already chopped off his mouth, head and body and him.” caused, and we as parents are also desperate and anxious because we don’t have a suitable bed.”

The mother of one said the corners of Kaylan’s current bed were too sharp and when she raised this with the family’s occupational therapist she was told to “put bubble wrap around the bed”.

Kayley said, “I just said, ‘Are you serious? This is a safety hazard for a child if they choke’.

“She then tried to call me and said that the only thing we could really do was wrap bubble wrap around until we got a suitable bed for him, which of a ‘pro’ to take care of Kaylan’s needs, anyway is not acceptable.”

Kayley instead chose to wrap blankets around the corners of the bed to prevent Kaylan from injuring herself and continued to sleep in the same bed as him despite suffering from fibromyalgia, a condition that causes widespread pain throughout the body and causes extreme fatigue.

The six-year-old boy needs a specially designed bed


Newcastle Chronicle)

Kayley claims she was told she would not receive an Oasis crib because the bed would “lock Kaylan in” and it “violated the rights of County Durham.”

However, Kayley and Jordan believe this would be the perfect bed for Kaylan as his limited mobility and severely limited vision means he cannot get up when he falls out of bed.

Kayley said, “No one was there to support my corner and three of the pros who attended the meet hadn’t even seen the bed we need for Kaylan so I couldn’t even try to sell it to them.

“I gave the occupational therapist a list of pros and cons to read and she didn’t even read one of them.

“Two of you in the meeting had never met Kaylan before. They didn’t know what his mobility was like or his mental state and just assumed what other people said. My heart sank.”

Sarah Burns, head of integrated commissioning for Durham County Council and County Durham Clinical Commissioning Group, said: “We apologize to Ms Thompson for the upset caused during the visit to her home and can assure her that was not the intention .

“We look forward to speaking with her and her colleagues to resolve this matter as quickly as possible in Kaylan’s best interests.”

A County Durham and Darlington NHS Foundation Trust spokesman said: “We are very sorry that Kaylan’s family is unhappy.

“Our multidisciplinary team, which includes a paediatrician, occupational therapist, physical therapist and social worker, works closely with families to ensure the people in our care are provided with the safest and most appropriate equipment for their needs.

“We would welcome the opportunity to further discuss the family’s concerns and they can contact our patient experience team on 0800 783 5774.”

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