One TEEN told how she could be paralyzed – or even beheaded – at any time due to her terrifying brain condition.
Allesha Barnfield, 17, said she felt like a “death sentence” as she desperately fought to get brain surgery before it was too late.
The former university student, from Highfields, South Yorkshire, says her daily headaches became crippling three years ago, she was bedridden – and couldn’t stand the noise or light, Mirror report.
Allesha once had hopes of becoming a lawyer, but her dream was shattered overnight when she was diagnosed with Chiari Malformation.
This condition causes ligaments in the spine to stretch and sees the victim’s brain tissue being pulled into their spinal cord.
It can eventually lead to paralysis and even known as internal decapitation, when the ligaments connecting the skull to the spine are severed.
Amazed by the prognosis, Allesha chose not to be told by doctors how much longer she had before this happened.
And she is now desperately fighting to have her private part surgery to prevent the worst.
“This situation has ruined my life,” said the teenager. I had dreams of becoming a lawyer and going to college but I couldn’t go anymore.
“Every day I was locked in my room in complete darkness because I couldn’t stand the light.
“I find the slightest noises extremely painful, even when someone is talking to me, I have to ask them to whisper.”
She added: “I asked them not to tell me how long I relied on my scans because I didn’t think I could tell. I feel like a death sentence.”
Allesha said she started experiencing “terrible headaches” in 2019, where she “felt physically shocked”.
They start once a week but quickly start happening every day, all day, she says.
I asked them not to tell me how long I relied on my scans because I didn’t think I could tell. I feel like a death sentence.
The teen said doctors and teachers were not able to take her ongoing pain seriously and she struggled to get a diagnosis of her condition.
She was finally diagnosed by an NHS doctor in September 2020, but found she was ineligible for NHS surgery.
Since then, she has found a clinic in Barcelona that offers a new type of surgery that promises to remove the condition.
Allesha has now set up a GoFundMe page to try and raise funds for the private treatment – which will cost her around £23,000.
In the UK, surgeons use a method called decompression surgery, whereby a piece of bone is removed from the spinal cord to relieve pressure – but there is a risk that stress will build up again causing problems. similar topics in the future.
At the Filum System clinic, Spanish doctors say their technique allows them to “remove the root cause and prevent further progression of the condition”.
Allesha wrote on her GoFundMe page: “In the past, my absolute dream was to study law in university, but now, it is a dream to live.
“It means the absolute world to me if you raise money to help me get the surgery I need to keep living and not wake up every day knowing I’m getting worse and worse.”
The NHS has been approached for comment.
https://www.thesun.ie/health/8248324/internally-decapitated-paralysed-brain-condition/ I could be liberated or paralyzed at any time due to my ‘death sentence’ brain condition