PARENTS panic after finding their son’s ‘floppy’ in his crib – before doctors notice a black spot on the boy’s bran.
Young Ronnie Kerman suffered a stroke in his sleep, which the devastated family soon learned was caused by a tumor.
Father-of-three Phil, of Hull, East Yorks., said: “I went into her room and she didn’t get up in her crib like she normally does.
“He lay down and I lifted one arm and then his leg and both went limp.
“I put it down to crawl because it can’t walk and can’t crawl yet.
“I immediately thought he had a The hit and remember one of those TV commercials and I told my wife Louise to call and an ambulance. “
Scans showed “a dark patch” on his brain after being taken to Royal Hull Hospital on 2 February, which turned out to be two cysts and one tumor on his brain.
He was then transferred to Leeds LGI hospital the same day, where they confirmed the find and doctors revealed it was the cause of the stroke.
Phil added: “Fortunately, I spot stroke symptoms right away, and although strokes are more common in adults – parents should be aware of the symptoms.”
When he was just 19 months old, the boy was diagnosed with visual movement disorder and neurofibromatosis type 1 – a genetic disorder that causes tumors to form on nerve cells – is now free. leaving the boy completely blind.
The boy – one of the youngest people in Britain to have The hit – also has Moyamoya disease, caused by a blocked brain artery.
He underwent several surgeries to address the tumor in his brain in 2018 and 2019, but tragically he was allergic to his chemotherapy.
Phil and Louise are told to prepare for hospice, before begging the doctors to do whatever else they can to save Ronnie’s life.
The fast-thinking doctors put the boy on Trametinib, a type of chemotherapy that he can take orally, and this shrinks the tumor.
Phil told Hull Daily Mail: “It was really amazing. I really couldn’t ask for more. He’s just a little superstar, we never thought it would be.
“He will turn six in June and he can even ‘lean’ from the living room to the kitchen, even though he can’t see, he knows where he is and where he needs to be. , that was amazing.
“He’s a nimble boy now and quite independent, he knows what he wants and likes. He likes music, everything, from baby tunes to rock music like AC/DC.”
ONE fundraising page was set up to help the family get equipment for Ronnie as he grew up.
What is a cerebrovascular accident?
A stroke is a life-threatening brain attack that occurs when the blood supply to part of your brain is cut off – without blood, the cells in your brain can be killed or damaged.
It can have different effects depending on where in the brain it occurs. It can change the way you think and feel, and cause speech problems or weakness on one side.
For some people, the effects of a stroke can be relatively minor and fade quickly, but for others it can leave problems that make them dependent on others.
About one in eight people who have a stroke die within 30 days, so it’s important to get medical help as soon as possible – the sooner someone is treated, the more likely they are to survive.
Symptoms in children include:
- weakness or numbness on one side of the body
- slurred speech or difficulty using language
- difficulty balancing or walking
- vision problems, such as double vision or vision loss
- sudden coma or drowsiness
Childhood strokes are extremely rare, affecting around 400 children in the UK each year.
This can be from the 28th week of pregnancy until the age of 18.
In adults, 85% of strokes are caused by obstruction and 15% by bleeding in the brain. But in children, both types of stroke are equally common.
In Moyamoya syndrome, the main arteries in the brain are narrowed.
To compensate for the reduced blood volume in the major vessels, a network of small blood vessels develops inside the brain.
Moyamoya means “smoke” in Japanese, referring to the appearance of abnormal blood vessels in brain scans.
It is not always symptomatic, but it can cause headaches and muscle weakness, as well as learning difficulties. It can lead to stroke and TIA in some children.
https://www.thesun.ie/health/8260375/baby-boy-stroke-cancer/ I found my son ‘floppy’ in his crib