A mother has blasted doctors who she claims her baby was perfectly fine days before a horrific diagnosis.
Chloe Wright, 26, knew in her gut that something was seriously wrong with her little girl Esmai, and sadly, she turned out to be right.
The now one-year-old started having seizures on October 5 and was advised to be seen at a walk-in center, where experts believed she had early signs of seizures epilepsy.
But later that night, Esmai developed a “bad seizure” and was taken to the emergency room at Royal Stoke University Hospital. Stoke on Trent Live reported.
Bartender Chloe, from Stoke-on-Trent, was assured her daughter was “perfectly healthy” despite being “empty behind her eyes”.
Doctors said Chloe was to wait for a referral within 10 to 14 days, but she returned the following evening.
The mother claimed: “The doctor said to go home and wait for the referral letter to come through.
“He said he wouldn’t send a seven-month-old baby home unless he thought he was fit and healthy and told me not to worry.
“But I knew my baby was not well and I asked if there was anything he could do but he said she was fine.”
Chloe added: “We went through a cycle of Esmai with seizures which I filmed and showed to the health team when we went to the hospital.
“Each time we went to see a doctor we had a different diagnosis and each time we were told that she was perfectly healthy and that we should wait for the referral letter.”
A disturbing video shows baby Esmai having a seizure and convulsing while Chloe holds her daughter’s hand.
Despite showing the videos to doctors, Chloe feels her concerns have been brushed aside.
She said: “I told them she was not well. I’m their mom, I see them every day and they’ve been seeing them for almost 30 minutes.”
After the two emergency rooms, Esmai was no better.
On Thursday October 7, Esmai was filmed at home suffering a “full blown seizure and shaking from head to toe” while a distraught Chloe was on the phone to NHS 111.
She was taken back to the hospital, as Chloe recalled: “Esmai needed oxygen because she was having trouble breathing.
“Eventually in the hospital, she was seen by a consultant who gave her an emergency CT scan and discovered a large brain tumor.
“The tumor was pressing on her brain and causing the seizures.”
Esmai was diagnosed with a rare and aggressive anaplastic ependymoma Tumor the size of a grapefruit.
the symptoms of the fast-growing tumor include seizures, uncontrolled eye movements, headaches, nausea, vomiting, fatigue, and difficulty concentrating.
In the UK, around 30 children are diagnosed with ependymoma each year.
According to the Genetic and Rare Diseases Information Center, about half of people diagnosed with this type of tumor are alive five years later.
Esmai was rushed into surgery to have the tumor removed and biopsied, with results showing the mass was cancerous.
The youngster is “not out of the woods yet” and has been undergoing grueling chemotherapy since the diagnosis, which will be necessary until November of this year.
Chemotherapy causes painful ulcers and burns in Esmai’s mouth, which Chloe treats with ice cream on her pacifier.
Chloe said: “We have our good days and bad days but I think that could have been avoided.
“Doctors said she would need at least a year of chemotherapy and that the tumor is life-threatening, with a survival rate of 50 percent.”
Chloe said last year: “If we had to wait the 10 days to see an adviser I wonder if Esmai would still be here. I think I helped save her life by being so persistent.
“I don’t want that to happen to other parents.”
A GoFundMe Page was set up by Chloe’s colleagues at Potters Bar to raise money for Esmai to go on holiday after her treatment and help with her recovery.
Head Nurse Ann-Marie Riley, of North Midlands NHS Trust University Hospitals, said: “We understand that it is an extremely distressing experience for any parent when their child is unwell and we are very sorry that Ms Wright had reason to complain about the service you and your child have received here at UHNM.
“It is our goal to provide the highest standard of care possible and we are in touch with Ms. Wright so we can fully investigate her concerns and resolve any issues.”
https://www.thesun.ie/health/8603894/baby-girl-fighting-for-life-doctors-said-nothing-wrong/ I knew my baby was terribly ill, but the doctors said there was nothing wrong