Olivia McCafferty has suffered cuts and bruises as a result of her daily cramps and is now undergoing cannabis oil treatment as her medication makes her feel ‘like a zombie’.
Image: daily record)
An eight-year-old girl who suffers 300 seizures a day has been “deprived of her childhood,” her mother said.
Olivia McCafferty suffers from a severe form of childhood epilepsy called Doose Syndrome, which has forced her into a wheelchair.
The young woman from Glasgow, Scotland, has suffered cuts and bruises as a result of her cramps daily record reports.
Her usual medications can make her feel “like a zombie” and she is now undergoing treatment with cannabis oil.
Mum Julie Cabrey, 45, said: “Her seizures have gone absolutely haywire for the past 18 months.
“One day last year we counted her 300th seizure. Now we just stopped counting.
“I have to sit down every day and watch my daughter have different types of seizures all the time. It was absolutely awful.
“She can’t do normal things that other kids her age do.
“She can’t go out to play with her friends, she always needs me there.
“She’s on a strict keto diet, so she can’t have McDonald’s or candy. She can’t even go to her friends’ birthday parties. You miss a lot.”
Olivia was just 15 months old when she was first admitted to the hospital with convulsions.
She was not diagnosed with Doose Syndrome until a few months later.
In 2021, the youngster underwent brain surgery to ease the seizures, but the procedure was unsuccessful.
She is now required to wear a hard hat at all times and has installed a camera in her bedroom to monitor her falls.
Mum Julie, who works as a tutor for Glasgow City Council, said she has now turned to funding her daughter’s medicinal cannabis oil treatment.
Olivia is currently receiving treatment at Sapphire Medical Clinic in Stirling – Scotland’s first licensed medical cannabis clinic – but the family is facing increasing costs of up to £1,200 a month to increase their dose.
She continued, “We’ve come to a point where we can’t live like this anymore.
“As a family, we had to sacrifice a lot. I had to change my career and go part-time so I could be available for Olivia.
“Family life is not normal. Olivia hates her seizures. She just wants to be like her friends.
“Since January we have been introducing cannabis oil. We’ve seen Olivia have good days with it.
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“I hope we can up her dose, but it’s double the price. We just can’t afford it.
“We just need a release from that so she can be a normal kid”
Julie hopes she can raise the money for treatment.
If you would like to donate to Olivia’s fundraiser, click here here .
https://www.mirror.co.uk/news/uk-news/mum-girl-8-who-suffers-27230807 Mom of 8-year-old girl who suffers 300 seizures a day says daughter is 'deprived of her childhood'