Mother diagnosed with terminal illness after bleeding from belly button

Ceri Bruinsma, from Anfield, said the bleeding started shortly after stopping the contraceptive implant two years ago, adding that if her stomach had not bled for two years her symptoms would have disappeared

The mother-of-two said her confidence was shaken by the pain, bleeding and swelling in her abdomen
The mother-of-two said her confidence was shaken by the pain, bleeding and swelling in her abdomen

A mother has been diagnosed with a common and terminal illness after months of bleeding from her belly button.

Ceri Bruinsma, 40, said the bleeding started shortly after stopping the contraceptive implant two years ago.

She said the blood flow increased every month around her period – until blood clots came out of her belly button.

The mother-of-two revealed her confidence was shaken by the pain, bleeding and swelling in her abdomen, the reports Liverpool echo.

Ceri, from Anfield, said: “I’ve always had painful periods. I have a really high pain threshold — my last baby was 10.5 pounds so I’m really good at managing pain in that area, but the way it’s continued, my tummy is starting to come out in the shape of an acute triangle, it feels just felt like there was a knife under my belly button.

“I get very swollen and can’t fit into any of my clothes, so I have to wear maternity clothes and it’s very difficult to move.

“My tummy swells like I’m 9 months pregnant, so any pressure causes this stabbing pain.”







Ceri Bruinsma, 40, said the bleeding started shortly after she stopped using birth control implants for two years
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Picture:

Liverpool echo)

Ceri visited a GP after a few months and suggested endometriosis as a possible cause.

They dismissed this chronic pain condition as “too rare,” even though it affects about one in ten women and some trans men and nonbinary people.

They gave her antibiotics even though tests came back for an infection, and even when scans revealed a hernia, her doctor attributed the symptoms to her weight.

Ceri said: “I’m in no way sensitive about my weight.

“I’ve always been chubby, but using my weight as a reason not to investigate was annoying.”

Endometriosis is a condition where tissue similar to the lining of the uterus grows elsewhere in the body, all the way to the lungs and brain, causing pain, heavy periods and fertility problems, and attaching to and disabling organs.

Although it is as common as diabetes and asthma means a lack of research and credibility, given women’s health for generations, that the cause is unknown and there is no cure.

Many people say that when they go to doctors with symptoms, they are not believed.

It takes an average of eight years from the onset of symptoms to diagnosis.







Endometriosis is a condition in which tissue similar to the lining of the womb grows elsewhere in the body
(

Picture:

Liverpool echo)







The mother-of-two said her confidence was shaken by the pain, bleeding and swelling in her abdomen
(

Picture:

Liverpool echo)

The 40-year-old said: “Don’t be afraid to fight for investigation.

“If something is wrong and you know your own body and you know when something is wrong, you need to go to the doctor and get a referral.

“Don’t suffer and think that’s okay.

“A lot of younger girls are told, ‘This is what it means to be a woman,’ which is really, really bad.

“We shouldn’t be in pain if we can’t get out of bed. This is not normal, this is not a bad time.”

It wasn’t until she asked to see a family doctor that Ceri was taken seriously.

She said: “I have a file for everything – an evidence file with pictures and everything.

“But I didn’t need to because as soon as I told her my symptoms, she said I needed a referral to an OB/GYN, so the ball started rolling.”

They found a “large” polyp growing from the lining of the uterus and referred her Women’s Hospital Liverpool, but the pandemic has slowed that progress.

Gynecology waiting lists saw the largest increase of any medical specialty since the pandemic began, according to to the Royal College of Obstetricians and Gynaecologists.







The bleeding stopped four months after surgery to remove the polyp from her uterus
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Picture:

Liverpool echo)

At this point, Ceri’s legs became swollen, she could hardly walk, and her hands and feet turned blue.

said Ceri : “When I got to my appointment with the women, I saw a counselor — a female counselor — and the first thing she said when I told her my symptoms was ‘umbilical endometriosis,’ and she said it sounded like I would have premenstrual dysphoric disorder.”

Ceri added: “I felt like kissing her because it was just a constant fight, I had a file with all the evidence in it. It seemed like nobody knew anything about umbilical cord endometriosis.

“If I wasn’t having abdominal bleeding, I probably would have been told I had IBS or something, but that — you can’t argue with that because it’s significant.”

The bleeding stopped four months after surgery to remove the polyp from her uterus.

Unfortunately, it came back, but Ceri’s treatment options are limited.

Even officially confirming an oral diagnosis of umbilical cord endometriosis — a rare form of the condition in which endometrial tissue grows in or around the belly button — would require surgery on her stomach .

Because her medical records say she has a hernia in that area, surgery can only be used if it’s the only treatment option available, Ceri said.

Even surgery to remove her uterus would not guarantee that endometriosis would go away.

Instead, she’s hoping that chemically induced menopause will end the pain and bleeding along with her periods.

Ceri said: “It’s awful because it’s such a life-altering condition and you’re being told to just move on.

“It affects everything — I’ve been in a relationship and now it doesn’t because it affects a relationship, it affects taking care of children.”

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https://www.mirror.co.uk/news/uk-news/mum-diagnosed-incurable-condition-after-27153637 Mother diagnosed with terminal illness after bleeding from belly button

Fry Electronics Team

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