Having a baby is an exciting and scary experience.
When Maria Campos and husband Florin Kecani found out they were pregnant in 2019, they were over the moon.
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But later in her pregnancy, Maria could no longer feel her baby’s movement and began to worry that something was seriously wrong.
After an emergency caesarean section, the 32-year-old, who originally comes from Spain, forgot to speak English due to the trauma.
Maria, who lives in Birmingham, said her daughter Amelia has “grown normally” but hasn’t felt much movement.
She went to the ER at 20 weeks but was sent home with doctors who advised that it was normal to be very little before 28 weeks.
“The only time I felt Amelia was when she had the hiccups, but I never felt any kicks or bumps like other mums do,” she told BirminghamLive.
After a trip to Spain, Maria was back in the UK at 30 weeks pregnant and suffering from back pain.
She went to Good Hope Hospital again and was hooked up to a monitor to watch Amelia move.
Maria said the medics couldn’t understand why she couldn’t feel her baby and advised her that she had an increase in fluid.
She was then hospitalized for a week.
But at 33 weeks pregnant, doctors decided that the safest option was to give birth to Amelia via caesarean section as she was unable to move.
Because little Amelia was born so prematurely, the mother and baby were transferred to Heartlands Hospital, which was better equipped for their medical needs.
“When she was born she was really purple. They gave her oxygen and she needed a tube down her throat.
“I couldn’t speak English – my English was gone – because it was so stressful. There was just no more room in my head,” Maria added.
Three weeks after Amelia was born, she was diagnosed with Prader-Willi Syndrome (PWS).
PWS is a genetic condition that can affect muscle tone, sexual development, and nervous system function.
The syndrome is very rare, with the NHS estimating it affects “no more than 1 in 15,000 children born in England”.
What is Prader-Willi Syndrome (PWS)?
PWS is a genetic condition that can affect muscle tone, sexual development, and nervous system function.
In addition, people with Prader-Willi syndrome are more likely to have learning disabilities.
Often there is also a constant desire to eat and a permanent feeling of hunger, which leads to childhood obesity.
However, the syndrome is very rare, with the NHS estimating that it affects “no more than 1 in 15,000 children born in England”.
The Prader-Will Syndrome Association UK describes the medical characteristics of the condition as follows:
• Hypotension: weak muscle tone and flaccidity at birth.
• Hypogonadism: immature development of sex organs and other sex characteristics.
• Obesity: caused by excessive appetite and overeating (hyperphagia) and decreased caloric needs due to low energy expenditure, although obesity is not usually a feature of individuals whose food intake is tightly controlled.
• Dysfunction of the central nervous system and endocrine glands: resulting in varying degrees of learning disabilities, short stature, hyperphagia, somnolence (excessive sleepiness), and poor emotional and social development.
Amelia, now two and a half, can stand and crawl with help.
Her parents had to pay thousands of pounds for private treatment to help little Amelia.
These include water and speech therapy.
Maria has now started a GoFundMe page to pay for her daughter’s treatments as she said she was being forced to go private due to NHS wait times.
She said: “Because of this lack of support, we started taking her to private professionals in Birmingham, Oxford and Spain as soon as the Covid-19 restrictions were lifted.
“All of this therapy was paid for for us, but as she gets older she needs more professionals to help her with her motor skills and also with her speech.”
The family are hoping for £10,000.
In a statement, University Hospitals Birmingham NHS Foundation Trust said: “We aim to provide the best possible care for our patients and we want to ensure that any concerns, fears or concerns are heard and addressed in the best interests of the families we serve, therefore We encourage Ms. Campos to formally share her concerns with her clinical team or directly with patient relations.”
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https://www.thesun.ie/health/8738317/giving-birth-traumatic-forgot-speak-english-days/ The birth of my little girl was so traumatic that I forgot to speak English for DAYS