Seb, from Tring, Hertfordshire, was diagnosed with leukemia after a distended vein appeared from his neck to his groin in what was actually a sign of cancer
Image: Herts Live/BPM MEDIA)
A boy diagnosed with a rare cancer at the age of three has endured 2,244 medical procedures in three years.
Little Seb, from Tring, Hertfordshire, has undergone intensive chemotherapy which began on his fourth birthday after being admitted to hospital when he stopped eating and began to lose weight.
He contracted repeated infections, which doctors initially attributed to contact with new kids in kindergarten, but after a bold vein ran from his neck to his groin mother, Claire Boulter rushed him to the emergency room.
Tests revealed a tumor in his breast and in February 2019 he was diagnosed with the blood-based cancer T-lymphoblastic lymphoma.
The grueling treatment led to muscle atrophy in his legs and swelling in his body, completely transforming the once-active toddler.
But now, after three years of treatment, Seb is cancer-free and back in school. HertsLive reported.
Herts Live/BPM MEDIA)
Mother Claire Boulter said, “It’s the words no parent wants to hear: ‘Your child has cancer.’ It was a huge shock and very depressing to see our active little boy come into this world.”
She described the first year of treatment as a terrifying and very distressing experience.
However, the family was grateful that there was treatment for their son’s cancer.
She said: “The chemotherapy was so brutal and could potentially have long-term effects, but we’re grateful there was any treatment for his cancer at all.”
During his time in the hospital, Seb and his family began collecting what he calls his “beads of courage.” Each bead represents a procedure. Seb now has a total of 2,244 pearls.
Seb completed his treatment on Friday June 24 after overcoming his long battle with cancer.
He’s back in school now, playing soccer and enjoying all the things a little boy should do.
“He’s already such a determined little boy and we can’t wait to see what happens when he doesn’t get chemo,” Claire said.
To celebrate the end of his treatment and to thank family and friends for the immense support, the family throws a “Seb Fest” party.
As Seb’s story circulated, the family was asked how people could support Seb Fest financially.
The family decided to set up a GoFundMe page to raise money for three charities that have supported them on their journey with cancer and continue to help thousands of other families battling the disease.
The three charities are Blood Cancer UK, Team Mikayla and Children’s Cancer and Leukemia Group.
Claire praised all three charities for their incredible work in helping families across the country cope with cancer diagnoses and told HertsLive that thanks to Team Mikayla, Seb’s wish to stay at Legoland was granted.
In addition, Blood Cancer UK conducted extensive research into Seb’s specialized treatment.
“His treatment plan would not have existed without her,” Claire said. “Without these charities, families are really struggling. It’s a really isolating time. Families need the support of these charities, as well as family and friends.”
https://www.mirror.co.uk/news/uk-news/boys-large-vein-turns-out-27325379 The boy's large vein turns out to be a rare cancer requiring over 2,200 medical procedures